AMVETS Feature on Cystic Fibrosis & Sean’s Pals
A Giant Veteran Inspired – Bill Squires
Bill Squires is an icon among icons; a Giant among veterans whose success among the top echelons of professional sports management is only shadowed by his ‘lead-by-example’ ability to inspire others to give of themselves above and beyond.
Bill and wife Jodi can talk for hours about the inspirations in their life surrounding their son Sean. How tough he is and how he’s about as patriotic as they come. How he understands what this country is about, and what the armed services are all about. They can talk about all the famous people he’s met so far in his 17 years of life. And they can only imagine what will transpire for Sean from those he’ll meet in the years to come. Bill’s enviable network of highpowered personalities, and role models for Sean, come from decades-long friendships and associations with sports management colleagues. Among them Kevin Abrams, the Assistant General Manager of the New York Football Giants, and Pat Hanlon, the Giants’ Senior VP of Communications (and Sean’s Godfather).
“What’s important are not my dreams for Sean,” said Bill. “What’s important are his dreams for himself.” In a perfect world, with all the attributes, blessings and high-profile network afforded him, Sean would surely aspire to follow in his father’s footprints and matriculate to the Naval Academy. The painful twist of fate? Sean Squires has a life threatening disease that affects his lungs and digestive system… a somewhat rare disease affecting approximately 30,000 children and adults in the U.S., yet it is the number one genetic killer of children.
Sean was diagnosed with cystic fibrosis (CF) when he was five years old. Compounding the devastating news, Bill and Jodi were told that there was no cure. Fifty years ago, children born with cystic fibrosis rarely survived through elementary school.
CF is an ‘orphan disease’ (meaning it affects less than 200,000 people in the U.S.). It doesn’t get the attention of government researchers or the pharmaceutical industry. Any efforts to develop drugs and treatments in pursuit of a cure for CF fall on the shoulders of the Cystic Fibrosis Foundation (CFF), which depends very heavily on private donations of friends and families of those with CF.
For more information about the dangers and conditions that Cystic Fibrosis patients face with their disease, visit the Cystic Fibrosis Foundation website at http://www.cff.org/
For more information about Sean Squires and opportunities to help Sean’s Pals change the future of those with CF, visit Sean’s Facebook page at http://www.facebook.com/pages/Seans-Pals/140257362711731 and http://fightcf.cff.org/goto/SeansPals.
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